Wednesday 27 June 2018

Can i see you ??

Not sure anyone that has MS feels the same way as i do sometimes. I do know that it is common to have certain emotions with MS. It effects us physically and emotionally.

 I find myself in emotional situations all the time,and i tell you it sucks! Mind you it also sucks for the ones around me. I have always been somewhat insecure but i must say the longer i have MS,the more insecure i get at times.
 it really depends on my day and how i feel. When faced with a bad day and i am in pain or any symptom MS gives me,it can make me terribly uncomfortable around others. While at home i have no issues,i can just go my own pace and rest when i need it. No one can see me so i am in my comfort zone.
Place me in a busy restaurant and i can totally feel out of my comfort zone. While I've had a bad day and feel very fatigued,things can get pretty bad with my emotions. I guess it's a feeling of being very overwhelmed and trying to act normal like everyone else,but really i want to hide in my shell.
 Basically i feel bad,most likely have pain,some spasticity going on throughout my arm and leg and MS fatigue has hit me.

 To be honest how can i feel comfortable? how can i feel secure about myself while feeling this way? Because i feel like this on the inside.........pretty bad..........i feel i look like this from the outside. this is totally false as MS is invisible and no one can see how bad i feel. in fact i probably look okay as I've done my hair,make up and put on a fancy dress and some days i even attempt high heels.
 For someone on the outside they really cannot see that i have MS and having a bad day.

 this is where my frustration comes in,because i cannot always hide how i feel. This causes a night out with my husband,not so fun. Most of the time he understands perfectly well but the nights where my emotional state is beyond fixing,the night is less fun. Which makes me think it's better next time to just say "hey tonight is not the night sorry".

 I notice these episodes when I've over done things in the day. Doing too much and exceeding my limits. Basically not giving myself enough rest. My mind seems to get tired and the brain fog sets in,and my speech becomes a bit weird. By weird i mean not finding my words.

 Does anyone have these issues? I would love to hear your stories and how you face these situations?

Best,
Mas x

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