It has been a long time again since my blog, so here I am.
To this day MS is still not very familiar to people. They have heard of the name, but most people do not have any idea. I do not blame them really as there is not enough information about this.
However, if people really want to know more about it they can look on the internet. At the same time the information given does not apply to everyone with MS. Each one of us is different and this can be physically and mentally.
For myself i have many symptoms on a daily basis and these are invisible. This is hard for friends to understand as they cannot see it. This doesn't mean i don't struggle on a daily basis.
Just because I did a long walk does not mean I don't suffer the effects of my legs being weighed down as soon as i am home. My stubbornness also does not help.
Many would ask why don't you work? It's simple really, I would not be able to handle the challenges of being reliable and showing up at work. I struggle in the mornings and not because i enjoy sleeping in, but because my body takes a while to function. This is physically and mentally.
The mentally part is a bigger problem for me then people can imagine. Again, its invisible. I struggle with multi-tasking and memory and when i get fatigue then these issues get worse. I often don't sleep well which makes the next day even harder. There are so many issues for me that considering a job is just not possible.
I know there are others with MS that have jobs and they seem to manage. I applaud those that are working, and they should be proud of themselves. But again, each person with MS is different.
I will always remember what my neurologist told me' Keep doing what you are doing. Those words till today inspire me.'
Unfortunately, in my experience a lot of people judge. I believe because it is an invisible illness they generally do not understand. This can be problematic for those of us that cannot work. Speaking about my own experiences, this kind of attitude hurts. There is nothing more than wanting to be normal and function like a normal person. But in reality, i have multiple sclerosis and my body doesn't allow me to function as normal.
Please don't judge. We are trying our best to live a normal life.
Best always
Mascha
