How often i am waiting in line,and thinking mmmm i would love to sit in that chair just for a few minutes and recover. That chair is for the people that work there i am afraid. I am sure if i would ask they would be happy to offer their chair. This also happens at functions where everyone is standing having their cocktail. Again i am thinking damn i would like to sit as my legs feel like cement and heavy like a brick.
Somehow Multiple sclerosis (MS) is still something we hide from the public. Why? We live in 2016 and this should not be hidden from the public,but yet we as MS'ers seem to be ashamed about our disease. How often i see newly diagnosed feeling ashamed about their MS.
This disease is already invisible to the public and still we try to hide it? I know a lot of us cannot be bothered to say anything as we always get the "but you look so good". or "you don't look sick".
Having had MS for many years i still find myself doubting if i should say anything. There has been times that i had so much pain that i just didn't care and spoke out saying i have MS. This often got me the cozy chair i so wanted to sit there and some sort of support. okay not everyone has empathy and you may at times get that dirty look'but hey at least i said it!!!!
Maybe one day we may not be ashamed about our MS and people will understand MS more better and have some empathy. My goal is to change that for every autoimmune disease where people don't have to hide it and feel comfortable enough to say what's wrong with them,without being judged.
To those that do not understand,we fight this battle everyday and yes we look good,but that doesn't mean we are not sick.
Mascha
