Saturday 12 November 2022

Where is my head 😫

 Where is my head is literally how I feel at times. This is one symptom of MS, cognitive issues.

Let me share my story. Everyone has a different experience including those with MS.

I know for myself being under a lot of stress has a big impact on my cognitive issues. They vary depending on the amount of stress, lack of sleep and fatigue or heat. I would say stress is the biggest problem. If the duration of stress takes too long my brain basically hasn't got time to breathe. 

A lot can impact this problem and that's noise, a place that's very busy with crowds or talking all at once. This can feel very overwhelming.  My brain tends to get cloudy or fuzzy. It can also give me pain.  It's a world of cloud and mist that I'm struggling to get through.

The world is moving along and I'm trying to catch up. Be it catching up socially or just trying to keep up with this world. 

Many things like electronic issues, trying to do tasks.  Tasks can range from doing grocery,s or just simple things in the home.

I have one story which got me totally upset for two days. You could say I felt so helpless and frustrated and the worst part not understood. Brain fog is invisible. 

So I had to call my bank. A simple phone call just to confirm my credit card. I got security questions which I didn't know any answers to. I had cognitive issues and at that moment my memory just went blank. 

I failed all questions and as you can imagine they didn't think I was the person I said I was. She gave me a few more questions and I was totally blank. Couldn't remember any of them. So she locked me out of my account. 

I totally felt useless and so upset. Now I got instructions how to proceed further but the problem is that , that's one of those tasks I find extremely difficult.  It's the understanding of the task and doing. 

I am sure I am not the only one with MS struggling with this.  I seriously believe there needs to be support on people with MS  that are unable to do these things. 

Cognitive issues are invisible.  They are a real problem to those with MS. Every day living is difficult.  Multi tasking and decision making are a big part of this problem. 

Our world is sometimes clouded and although we may seem fine, we need a little help in this world.  We need understanding.  We are not okay.  We have MS and need support.


Best

Mascha :(

















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