Friday 10 June 2016
Wednesday 1 June 2016
The Face of MS
There has been a lot of awareness about MS of late,as we have had awareness day. But this is not the only thing. 2016 seems to be the year of research and not just research,but the final phase (phase 2 and phase 3). The final stages of research which gives new medication the FDA approval. Research of finding a medication to treat lessions that have been damaged in the nervous system and medications that give less side effects. In this includes finding a cure for multiple sclerosis.
There has also been a lot of advertising on TV and on MS sites. The thing that got me last week was the advertising of people being active with MS. I am not just talking about a walk around the block but rock climbing or cycling a marathon. This really set me off and got me thinking. This is not how MS looks like. Most people with MS cannot even run,climb stairs let alone climb Mount Everest. The face of MS is not been seen,but a false one.
Out of my irritation due to MS symptoms i posted my comment on one of the MS sites. In return i got a lovely email back stating that she understood my concern and if i could write my story.
I wrote my article stating that my MS gave me a lot of symptoms and pain,and that if i could walk to the third level of stairs it would be a good day. And i am not alone. There are more people with MS that have trouble just getting through the day.
So i was very thankful i got the chance to write an article on my point of view. These well meant advertisements show a whole different face to multiple sclerosis. The public sees that by having MS that we are fit and active But in fact it's the opposite.
I was lucky to be able to share my story. Having this irritation also got me another web site for MS,but writing for them.
By giving my personal story,i am hoping it will give a different face to MS. The face of pain,anxiety,isolation,insecurity and battling this disease from day to day and a feeling of achievement when we do survive the day.
2016 let there be a cure!!!!!!!!!!!!!!!!!
Mascha :)
There has also been a lot of advertising on TV and on MS sites. The thing that got me last week was the advertising of people being active with MS. I am not just talking about a walk around the block but rock climbing or cycling a marathon. This really set me off and got me thinking. This is not how MS looks like. Most people with MS cannot even run,climb stairs let alone climb Mount Everest. The face of MS is not been seen,but a false one.
Out of my irritation due to MS symptoms i posted my comment on one of the MS sites. In return i got a lovely email back stating that she understood my concern and if i could write my story.
I wrote my article stating that my MS gave me a lot of symptoms and pain,and that if i could walk to the third level of stairs it would be a good day. And i am not alone. There are more people with MS that have trouble just getting through the day.
So i was very thankful i got the chance to write an article on my point of view. These well meant advertisements show a whole different face to multiple sclerosis. The public sees that by having MS that we are fit and active But in fact it's the opposite.
I was lucky to be able to share my story. Having this irritation also got me another web site for MS,but writing for them.
By giving my personal story,i am hoping it will give a different face to MS. The face of pain,anxiety,isolation,insecurity and battling this disease from day to day and a feeling of achievement when we do survive the day.
2016 let there be a cure!!!!!!!!!!!!!!!!!
Mascha :)
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