It amazes me that most people do not understand or want to understand. Having MS most of us cannot plan ahead. In fact we can only plan by hour but generally planning on the day is for most of us fine,well for me anyway. We wake up every morning different.
Either pain or just not able to function on that day.
Everytime I need to cancel on the day due to MS symptoms,it gives me a suprise how there is no empathy in people at all. We don't cancel for fun,in fact we look forward to our outings or meeting friends or family. But having MS it's just not possible to make plans ahead.
How often I have lost friends due to this is countless. Is it really that hard to understand and have compassion? After all it's not our fault.
This reason often makes me not want to make an effort. It's too hard and tiring to explain over and over why we had to cancel . So to the people that do understand,it means a lot that you understand.
Some of the basic symptoms bellow.
- difficulty getting out of bed. Our body aches and is very stiff that it's a struggle to get out at times.
- migraine and feeling sick.
- too much pain as in nerve pain,spasticity and spasms.
These were just a few,but there are many more of course.
Please know that we also hate cancellation but it's a chronic illness and our days are very difficult from day to day.
Mascha
Either pain or just not able to function on that day.
Everytime I need to cancel on the day due to MS symptoms,it gives me a suprise how there is no empathy in people at all. We don't cancel for fun,in fact we look forward to our outings or meeting friends or family. But having MS it's just not possible to make plans ahead.
How often I have lost friends due to this is countless. Is it really that hard to understand and have compassion? After all it's not our fault.
This reason often makes me not want to make an effort. It's too hard and tiring to explain over and over why we had to cancel . So to the people that do understand,it means a lot that you understand.
Some of the basic symptoms bellow.
- difficulty getting out of bed. Our body aches and is very stiff that it's a struggle to get out at times.
- migraine and feeling sick.
- too much pain as in nerve pain,spasticity and spasms.
These were just a few,but there are many more of course.
Please know that we also hate cancellation but it's a chronic illness and our days are very difficult from day to day.
Mascha
