https://youtu.be/W342tiClGi0 This video which was shown round the year 2009 for MS awareness. To this day i still believe this is the best video to show how MS is. It brings tears to my eyes every time.
Wednesday 25 May 2016
Monday 16 May 2016
Being strong
My above title is not how i feel. Since of late,i am being told i am strong struggling through my MS. This is mostly by family and my husband. When this is said,i often feel a bit shy and lost for words. In my view i feel i have no choice with this illness . What else am i going to do? Sit back and let it take over my life? No. When they do say this i feel it's a great positive and makes me want to keep fighting. I am always thankful when my husband shows it in many ways but also him saying it gives me more strength.
For myself i don't see myself that way at all. Firstly i am scared of those MRI's and i am way over due. I stress about this illness more often then not. Trying to do everyday tasks is a blessing if i get through them. But saying this i do my best to make things work and try to stay positive.
I don't think you can get through this illness without being strong. There are so many uncertain things having MS. Not knowing what everyday brings. Can i function today? Can i walk today to get my drycleaning? Do i need to cancel my appointment? And the list goes on. Yet these simple words and kind gestures makes us keep going on. And i love my husband for doing this for me.
I hope the people who do have MS or a chronic illness have a good support of family and help them to keep being strong.
Mascha x
For myself i don't see myself that way at all. Firstly i am scared of those MRI's and i am way over due. I stress about this illness more often then not. Trying to do everyday tasks is a blessing if i get through them. But saying this i do my best to make things work and try to stay positive.
I don't think you can get through this illness without being strong. There are so many uncertain things having MS. Not knowing what everyday brings. Can i function today? Can i walk today to get my drycleaning? Do i need to cancel my appointment? And the list goes on. Yet these simple words and kind gestures makes us keep going on. And i love my husband for doing this for me.
I hope the people who do have MS or a chronic illness have a good support of family and help them to keep being strong.
Mascha x
Monday 2 May 2016
Our own little bubble
Often due to social events or our own stress from our MS we hide in our own little bubble. We get tired from outings or travel or for no reason our energy just stops. Having pain also makes our body tired. What is normal for a person doing their tasks, is double the effort for people with MS or a chronic illness . Our fuel tank gets to zero faster and makes us tired quicker .
My own little bubble is where i hide when i am over tired and have constant pain and feel scared to what may lie ahead. Usually this lasts a day or two until i get out of this bubble.
I pull myself out of social media,and people in general. I don't like doing this but somehow like most people with MS seem to hide now and again. Mind you i am sure this would be different if i would have a support network of people with MS. Also having professionals to turn to,would be of great help.
This is not an uncommon thing and it usually passes in a matter of days. I suppose it just feels safe.
The problem with this behaviour is that we get into isolation by doing this.
Often after some rest and re charge we come out as a better person :)
My own little bubble is where i hide when i am over tired and have constant pain and feel scared to what may lie ahead. Usually this lasts a day or two until i get out of this bubble.
I pull myself out of social media,and people in general. I don't like doing this but somehow like most people with MS seem to hide now and again. Mind you i am sure this would be different if i would have a support network of people with MS. Also having professionals to turn to,would be of great help.
This is not an uncommon thing and it usually passes in a matter of days. I suppose it just feels safe.
The problem with this behaviour is that we get into isolation by doing this.
Often after some rest and re charge we come out as a better person :)
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