Finding that special one.

It has taken me a long time to finally write my blog. From my time in Australia and back to Europe,things have been quite busy.

 while in Australia i got the nasty flu which left me feeling sick for a long time. What i realised travelling from both continents,that i don't have any MS back up or support at all. I have been trying to set up my MS support in both countries and both not succeeding .
In Australia they do  have very good neurologists and specialised in MS. The problem is getting into the system or being put on a waiting list. By the time i get my information i need to leave countries again. I stay for two months and sometimes up to three months. You would have thought this gives you enough time but honestly the time just goes by. Being struck with the flu and then out of order for a month doesn't help either.

 So i am back in Monaco,and there are no MS specialist or great neurologist that i have come across as yet. So again no back up here either.
 My medical support is in Holland,in Amsterdam.My neurologist is an MS specialist at the VUMC in Amsterdam and they have a whole section just for MS. I must say their system is fantastic.

 My neurologist is very good and knows what he is talking about and hence many years of experience. The most important for me is being comfortable in his presence. feeling at ease and not being rushed and taking time for his patients. I leave with a feeling of comfort.

 They also have a login system where you login and can ask anything to your neurologist or nurse or anyone assisting the MS clinic. this does require a password of course,which they then send you a code to login. this system works perfect for me from Monaco.
 two weeks ago i had my yearly control,consisting of having my MRI and the following day seeing my neurologist. The outcome was all good. No new activity.

 Yes it's not practical flying to Amsterdam for these yearly appointments but definitely worth it. it's actually exhausting but i think that's more a mental state of mind then anything else.

 My point of this story is basically that having a good neurologist is very important,and feeling comfortable with your neurologist. You may need to travel an hour or three hours or to a different country,but at the end of the day if this neurologist or any other medical team is good,it's so worth the travel time. It's not ideal but i can tell you from my experience that it's well worth it.
 Oh yes i  forgot to mention that i was born in Holland :) So speaking in my own language does of course help things. Mind you i was a young girl when i left to Australia but it's still the language i speak now.

 Anyway i hope everyone has their own fantastic neurologist and if not,keep searching. There is one out there for sure!!
Feel free to follow me on my blog :)

Take care,
Mascha :)